Saturday, June 27, 2015

A DONOR IS A TERRIBLE THING TO NEED

THE POST BELOW IS FROM APRIL, 2014.
WE TRIED EVERY TREATMENT POSSIBLE ONCE THIS NEW DONOR STEPPED IN TO TRY TO GIVE ME A CHANCE AT MORE TIME HERE.
I FINALLY HAD A MYELOABLATIVE TRANSPLANT, OTHERWISE KNOWN AS A MINI TRANSPLANT, ON FEBRUARY 4TH, 2015.
I'VE BEEN IN AND OUT OF HOSPITAL WITH COMPLICATIONS, AS THEY SAY, SINCE APRIL,
BUT I WOULDN'T TRADE THE CHANCE I'VE HAD FOR ANYTHING.
IT SHOULDN'T TAKE SO LONG(3+YEARS!) TO FIND YOUR MATCHES.
About a week ago we learned that a donor has come forward for me, a PERFECT MATCH!
We are super grateful and I am working even harder to get to transplant, to have MY chance at transplant.
BUT, there are still many many people who do not have matches, many many people who will die because their match didn't know to register. HELP ME FIX THIS! Have a drive wherever you are, contact ME, my wonderful team will take care of all of the details.

Let's all appreciate each other and our loved ones extra this week, heck, this summer, especially. Let's appreciate that we get to exist at all and know other beings and have love and affection, and, yes,even a bit of crazy that can happen among friends and family, let's all keep in touch and in love with each other. I LOVE YOU, EACH AND EVERYONE.

Thursday, May 2, 2013

Come and let me help you.

A year ago today I was in hospice care at home. My time was short, because of the nature of the main lymphoma I have to live with. I was so grateful to be where I was, able to see my loved ones OK, able to know that life is so good. Today, I am in partial remission once again, taking a drug that wasn't available to me a year ago, having a chance at even more time, and out of hospice care! I am walking for months now, wearing clothes on most days, able to see with my eyes and not just my heart. Go ahead, complain about anything to me, I love you, I see your challenges, frustrations, pain and hurts. But, for me, my hurts, my disappointments, they pale in the presence of this gift of existence, for me and for you.Let's Help Rebecca Save Lives!

Friday, March 15, 2013


OK, BACK TO OUR REGULARLY SCHEDULED PROGRAM!



I Shared My Dream On TV! Now YOU can help to Save Lives, maybe even mine!

I shared my dream of changing the culture of donor registration with television channel 11 PIX in Manhattan- here's a copy of the interview that they aired! (thanks to Save1 Person!)
As always,  here is the link to my Be The Match donor drive-Be The Match Let's Help Rebecca Let's Save Lives!

PLEASE, SWAB, SHARE & DONATE! Let's Save Lives, maybe even mine!

Sunday, February 24, 2013

I Shared My Dream On TV! Now YOU can help to Save Lives, maybe even mine!

I shared my dream of changing the culture of donor registration with television channel 11 PIX in Manhattan- here's a copy of the interview that they aired! (thanks to Save1 Person!)
As always,  here is the link to my Be The Match donor drive-Be The Match Let's Save Rebecca, Let's Save Lives! PLEASE, SWAB, SHARE & DONATE! Let's Save Lives, maybe even mine!

Friday, February 15, 2013

Let Me Share My Voice & Visage!



Here is a link for ANYONE ages 18-44 to register, FREE!
Here is our Be The Match web page, which includes that registration link AND updates on scheduled drives AND opportunities to support this financially:
Be The Match Let's Save Rebecca!