Saturday, June 27, 2015

A DONOR IS A TERRIBLE THING TO NEED

THE POST BELOW IS FROM APRIL, 2014.
WE TRIED EVERY TREATMENT POSSIBLE ONCE THIS NEW DONOR STEPPED IN TO TRY TO GIVE ME A CHANCE AT MORE TIME HERE.
I FINALLY HAD A MYELOABLATIVE TRANSPLANT, OTHERWISE KNOWN AS A MINI TRANSPLANT, ON FEBRUARY 4TH, 2015.
I'VE BEEN IN AND OUT OF HOSPITAL WITH COMPLICATIONS, AS THEY SAY, SINCE APRIL,
BUT I WOULDN'T TRADE THE CHANCE I'VE HAD FOR ANYTHING.
IT SHOULDN'T TAKE SO LONG(3+YEARS!) TO FIND YOUR MATCHES.
About a week ago we learned that a donor has come forward for me, a PERFECT MATCH!
We are super grateful and I am working even harder to get to transplant, to have MY chance at transplant.
BUT, there are still many many people who do not have matches, many many people who will die because their match didn't know to register. HELP ME FIX THIS! Have a drive wherever you are, contact ME, my wonderful team will take care of all of the details.

Let's all appreciate each other and our loved ones extra this week, heck, this summer, especially. Let's appreciate that we get to exist at all and know other beings and have love and affection, and, yes,even a bit of crazy that can happen among friends and family, let's all keep in touch and in love with each other. I LOVE YOU, EACH AND EVERYONE.

4 comments:

  1. Oh, Sweetpea!

    I think of you so often, and wonder how you're doing. It's a lovely thing to see your sweet brave spirit all spread out in words of wonder and gratitude, and I pray that your perfect match is absolutely the one to set you on your way to healing and a smoother path.

    Our best to you and your Kiddle, from way over here in the Heartland---we're smack-dab up to our ears in clutter, and have been since end of March, when we undertook to have the downstairs kitchen renovated. Almost to the finish line, as the last four plumbers and a supervisor departed last week, with only the putting-to-rights left for me.

    Love to you both, and I'm SO GLAD for your news!

    r

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  3. While I am not a donor the title of your post caught my attention. It seems that you have a great passion for survival. I envy your confidence in the midst of extreme peril.

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  4. Hi Rebecca

    I've been thinking about you the past few days and now I understand why. The first anniversary of your SCT is tomorrow. Congratulations! It's also the five year anniversary of my diagnosis - 4 Feb 2011. How astonishing is that synchronicity?!

    I'm sorry to hear that you've lost your eyesight, but delighted to know that you are still in the world and spreading love.

    I wish you the health and good quality living to accomplish all you wish for and the ability to continue to love and be loved. And I would still like to be your friend, especially in the spirit of "light, love, complexity welcomed".

    My very best wishes
    Jet x

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