I am doing my best to think of something to do that will be helpful for others who need a transplant donor, to lessen my sorrow and disappointment- something that will have a lasting impact.
I have some ideas, after all, what good is my life's journey's pain if I can't use it to somehow inspire others to do something wonderful? I AM, though, I AM sad and disappointed, and frightened.
So, I'm only out and about when I can maintain some cheer for folks and always I'm thinking thinking thinking of a plan.
I want to change the way people think of donation in general, stem cell, bone marrow, blood, organ donation.
I want to make it a cultural rite of passage to adulthood, akin to a first legal drink, a driver's license, registering to vote.
For people to celebrate it, understand it and look forward to being old enough to do it, not for it to be a mysterious and oft misunderstood action.
If registering for these things was more common, more peoples' lives would be saved without so much drama, stress, expense, difficulty and rarity.
Without so much heartache.
I love you, thank you all for your gifts to us of comfort and affection, the telephone calls, texts, emails and gifts have been such a surprise. I am so touched. I treasure you all so much, I can not express it enough. I hold your affection towards me and the emotional support I receive steady in my heart. What a comfort to know that we have been here together, that there are folks like you wonderful souls, in this world. I am still surprised this minute at the affection I'm receiving, just when I am truly in need of it. thank you all for knowing this, and for coming forward. You are helping me get through this horror so much, my sadness would be much stronger if I didn't have your presence in my life. Thank you.
Now, let's all pull together and save some lives, help me to leave a legacy of light!
Here are some links to start with, links in the main about me, but know, please, that my goal is not to find a donor for myself. More wordiness from me after the links:
My transplant doctor, Dr. Sunita Nasta, in case you want to contact the team for anything
An article from Philadelphia Jewish Voice about my search, with links to Be The Match
The Gift Of Life page that my cousin Rebecca made for me, what a wonderful gift!
A link to Be The Match, a registry in the US
A video about my search
A list of registries all over the world
I want to get 10,000 people to register to become donors before I am gone, that is a small enough number and quite doable if we all pull together!
My genetics are very rare, and finding another match for me will be difficult, but imagine, finding matches for others- so they do not suffer this way- what a gift we can give.
I do not want just certain people to register, I want you to ask and cajole EVERY PERSON whom you are in contact with to register, and if they can not register, ask and cajole them to get someone to else to.
If you have a job, if you go to a church or synagogue, temple or mosque, if you are in a knitting group, chorus or other social activity,if you are in school, if you are a member of a museum, if you shop at a store or a farmers' market, if you do ANYTHING that involves others, ANYTHING AT ALL, PLEASE consider making a drive in that place, PLEASE. I will help you to figure out how to go about it, just ask me, I will learn and then help you to learn.
I am not giving up on my journey, I am full of hope for many tomorrows, this is just the next step for me in my love of helping others, I see this need and the answer came to me and now I am doing this, and I am asking YOU to help me.
I have no money to achieve this, but I do have a heart that cares and a mind that is quick, and a story that just may open the heart of others to do something that they might not otherwise feel comfortable doing, well, let's do this, let's SAVE SOME LIVES!
PS: Didn't I look good yesterday? Just back from chemotherapy, too!